Human Rights Review on Leprosy by PerMaTa Sulsel/YDTI


9 March 2022. The Universal Periodic Review (UPR) is a regular review of the human rights records of all 193 UN member states. In 2022, after 5 years, it is Indonesia’s turn again to report on its progress in realizing human rights for its inhabitants.

In addition to the report by the government itself, interest groups have the opportunity to analyze the situation from their perspective and for their respective constituencies. 

PerMaTa South Sulawesi, supported by YDTI, is leading the development of a human rights report for people affected by leprosy. This is the first time that leprosy is discussed separately from disability.

To prepare this report, we initially defined a range of topics in a series of internal meetings and then sent an open catalog of questions to three local leprosy organizations. After an initial analysis, we then discussed the results and formulated recommendations in two online discussions with around 20 activists, almost all of whom are affected by leprosy themselves. We have been able to gather a lot of direct, practical knowledge about ongoing human rights violations that people affected by leprosy are exposed to. We then finalised our report with technical support from our Australian colleague, Dr Emily Rowe.

We thank the International Association of Leprosy Organizations (ILEP) for this opportunity to expose human rights violations against people affected by leprosy in Indonesia!


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